Sooooo....It's been a while. I'd love to offer up all the usual reasons for a blogging lapse--busy, busy, oh so busy!, sick kids, school demands, Spring Break, marathon training, preschool teaching, soccer, tennis, gymnastics, teething baby, the final season of Lost, etc...--but the real reason is actually harder to pinpoint. It's just that...I haven't really wanted to write much lately. And it's not because of a lack of material (anyone interested in hearing about our two trips to the ER in two days? What about our family vacay at Disney World? Anyone? Anyone? Bueller? Bueller?). I think I've just been processing a lot of things lately.
Not to be dramatic (oh, who am I kidding, of course I'm being dramatic), but as the one year mark of Amelia's PHPV journey approaches, I find myself increasingly anxious and prone to the teary-eye. Just thinking about that day causes my heart to race. I can remember every detail, from what I was wearing to what the weather was like to what I said when I called Jason at work and told him to meet me at the eye doctor. I recall all the minute details of that day, yet I kept the hard stuff--the emotions--locked away.
In the last year, I don't think I have fully let myself grieve over the enormity of what Amelia is facing. I think I have denied myself that because, as so many well-meaning people have pointed out, at least it's not cancer! She still has one good eye! What's the big deal?? To some extent (maybe a great extent), they're right. But the fact of the matter is, pain is pain. And if "is it cancer?" is the litmus test by which we allow ourselves to feel pain, most of us would fall short. Thankfully. But that doesn't mean it doesn't hurt.
Trust me when I tell you that nothing will shake you to the core like hearing your child has been given a "challenge". Your mind will go places you don't want it to go. You will google the same thing over and over looking for more, better, different, information. You will constantly question whether you are doing enough, whether you have the right doctors, the right treatment, the right plan, and, if you are a mother, if you somehow caused it. You will ask hard questions. You will look for answers that don't exist. You will worry. You will wonder...
But then you will look at your child, and you will forget. You will see only her joyful spirit and not her "challenge". You will see the way she adapts to her surroundings. You will note that she doesn't consider herself "challenged". You will be thankful.
And you will finally decide it's no longer time to grieve.