Monday, June 1, 2009

Where We're At

Yesterday, we took Amelia to Little Rock for a follow-up appointment. The news was good! Amelia's retina has improved beyond what her surgeon had expected could be possible based on what he saw during her surgery. Don't misunderstand--her condition is still far from good, but this small victory feels huge to us. Dr. B was hesitant to tell us what this means in terms of her prognosis, but said "Let's just see what the Good Lord does with her."

Sounds like a good plan to us.

Over the last several weeks, I've started at least five posts on Amelia's eye condition. They all remain unfinished, and all signs point to them staying that way. For some reason, I've found it much harder to write about this experience than to actually live it.

The short story is that, while Amelia handled the surgery very well (probably better than her parents), her eye was in much worse shape than her doctors had originally thought. Some day, I'll recount the horror I felt when her surgeon emerged from the OR not 15 minutes after taking her back and asked me where Jason was (um.... Starbucks?) because he needed to talk to us. I think I'm still suffering from post traumatic stress disorder from that one, so I'll save it for another post.

For now, Amelia's prognosis remains uncertain. Her lens had to be removed and her retina was partially detached. These two unexpected events open up a new set of possible complications for her and make it difficult to know what her long term vision will be. We will hopefully find out more when we go back to Little Rock later this week.

The good news is that our sweet girl is as sweet as ever. And, other than a red, irritated eye, she's pretty much back to normal. Now we wait, which is proving to be the hardest part of all.


Lisa said...

Wow - I can't even imagine. She is so beautiful and we'll be praying for a great doctor's visit and some answers.

Cortney said...

I hope I get to see that precious little angel this week. Love you, Mer!

Alison said...

Unfortunately, I know just how you feel. I too have started many posts recently that was too painful to finish. It's one of the hardest things about having a child with PHPV, you just don't know what to expect from day to day, but the good thing is that children are very resilent.

Also, I started a new blog just about our daughter and her PHPV. Feel free to check it out.