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Time stood still on Friday.
That was the day that we were told Amelia has
PHPV, a congenital eye disease that has left her with little, if any, vision in her right eye.
Time stood still.
Surgery will be performed in the few next weeks. Surgery on the beautiful brown eye of my precious baby. Surgery that may or may not improve her chances of ever having useful vision in that eye. Yet, surgery that we have to try because if we don't, we'll never know.
Time stood still.
After surgery, Amelia will begin an aggressive regimen of eye patching and glasses. She will most likely have to wear a patch on her "good" eye for 6-8 hours each day in the hopes that her "bad" eye will regain some vision. She will also wear glasses from now on. This therapy may or may not improve her chances of ever having useful vision in her right eye.
Time stood still.
Children with PHPV are predisposed to glaucoma and cataracts, things we will have to watch for over the years. She will also be at risk for retina detachment.
Time stood still.
We don't know what to expect. We don't know whether Amelia will ever see more than light and shadows in her right eye. We don't know if she'll have glaucoma, develop a cataract, or experience any other complication. We don't know so many things.
But we do know this: we will do whatever it takes to ensure that Amelia has the best treatment and the best chance for usable vision. We know that Amelia is loved by and being prayed for by so many people. We know that she is exactly the way God intended her to be, that she is fearfully and wonderfully made, and that God has a plan for her that is much bigger than this eye disease.
As we await our consult at Arkansas Children's Hospital, please pray for the following specific things:
--That her lens will not have to removed during surgery
--That we will make the best choices for her treatment
--That we will have peace through this process
I praise you because I am fearfully and wonderfully made; your works are wonderful. I know that full well.
Psalm 130:14